PATCHES HEART GROUP

Provide information to families of children with acquired /congenital heart disease, plus much more including links to other heart groups .

For children with heart conditions and their families, online forums where you can chat to other parents and share experiences ,plus much more .

Offers support and information to families affected when a child has only half a heart ie HLHS, complex pulmonary artresia etc

Great publications on certain congenital heart disease's, Cardiac Liason Nurses plus much more .

Welcomes anyone with an interest in heart problems associated with down's syndrome.

The Cardiomyopathy Association helps sufferers and their families best mange the impact of cardiomyopathy

Amelia Matters is an organisation that helps to support children who suffer from Congenital Heart Disease (CHD). By educating and raising awareness we hope to help children living with a CHD and their families.

Helping to improve the detection, diagnosis and care of heart babies at birth and soon after.

A great website promoting awareness and information on congenital heart disease .

Childrens Heart Association is a charity in the north west of England

To provide help and support to families treated at evelina childrens

For families treated at the Freeman Hospital

Childrens Heart Surgery Fund is the award winning charity supporting the Childrens Heart Surgery Unit and Paediatric Intensive Care Unit at Leeds General Infirmary.

KEEPTHEBEAT is an exciting new charity established with an aim to provide hope and support to the families affected by congenital heart defects. The website will have a particular interest in Hypoplastic Left Heart Syndrome, but over time we hope to develop and cover all Congenital Heart Defects.

Supporting families treated at The Glenfield Hospital Leicester

The only parent run family support group for 22q11.2deletion families

Max Appeal is a UK charity supporting families affected by DiGeorge syndrome.VCFS and 22Q11.2DELETION

Unique - but not alone. The rare chromosone disorders support group.

Information about Barth Syndrome

Providing information and support on all aspects of living with Down's syndrome to all who need it

Syndromes without a name ,run by Genetic alliance offering support and information to families of children with undiagnosed genetic conditions

For families with disabled children

May be able to offer information and more besides.

May be able to offer you further advice, information and support.

Helps families with special needs children aged 0 - 19 years.

Information and links.

The uk's largest provider of grants to low income families raising disabled and seriously ill children and young people.

Caudwell Children's vision is a world where all children's needs are met throughout childhood; where disabled children and their families have the right to choice, opportunity, dignity and understanding. We are passionate about improving the health of children and ensuring every family has access to the equipment, services and treatments they require.

A worldwide charity for children, aiming to provide magical experiences for those who are seriously ill, disabled or disadvantaged . (subject to meeting criteria)

Grant wishes to young people and children fighting life threatening conditions

Their aim is to make magical memories for a wish child and their family to remember for a lifetime .

Granting wishes to seriously and terminally ill children and entertaining over half a million children every year in hospitals and hospices throughout the uk.

Rays of Sunshine Children's Charity was formed in 2003 to help children who are living with serious or life-limiting illnesses between the ages of 3-18, across the United Kingdom. It does this by:- 1.Granting these children's wishes however impossible the wish may seem 2.Granting hospital ward wishes 3.Organising events and outings for large groups of seriously ill children such as trip to Legoland and the Sunshine Concert

Wish granting

Providing support in your own home

This section is for our Heart to Heart (UK) Group Members to purchase Cubbies for their own children with Congenital Heart Defects, or to sponsor other children with the similar conditions or to sponsor an Angel Heart Warrior Cubbie for parents who have tragically lost their baby/child to Congenital Heart Defects (CHD) Heart to Heart (UK) is a Facebook group aimed at sending Heart Warrior Cubbies to children all over the UK using donations or by sponsors purchasing for the children included on our waiting list. If not purchasing for your own child, please ensure you insert the child's parents Facebook name in order that we can contact them for full details and postal address.