Are you a parent /carer or family member of a child with a congenital heart defect / acquired heart condition ?
Would like help and support ?
Would you like to meet other families in a similar situation to yourself with heart children ?
Would you like more information on your childs diagnosis or areas associated with it ?
Would you like the opportunity to attend a group Where you feel comfortable and at ease with others ?
Would you like to be able to talk to other heart parents online in a safe moderated group ?
How we can help
Friendly parent to parent support
24 hour telephone support
Regular group sessions for families
Information and signposting to relevant services or other organisations
Meet other heart parent / carers
loan certain medical equipment to families who may need it
Help with hospital costs (subject to criteria )
Active online support group for Heart families
Family fun days and events for the whole family