PATCHES HEART GROUP

Here to make a difference to Heart Families

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FUNDRAISER BOWLING NIGHT

Posted by Patchesgroup on March 5, 2012 at 8:45 AM

We are now pleased to announce that our fundraising evening at Mansield Superbowl will be on the the 10th June 6pm- 10pm

This is a ticket only event ,

Tickets are £10 per person this includes shoe hire and an evening of bowling

The bar will be open so have a drink and let your hair down x

For more information phone maria on 07973346736

xxthankyou xx

Ashfield mile Family fun run /walk

Posted by Patchesgroup on March 1, 2012 at 7:05 PM

Hi folks we have several people taking part in the Ashfield family mile on the 15th April at Ashfield school at 10 am , anyone else who wishes to join us can please contact us for more information x many thanks maria & adele xxxx

charity bowling night

Posted by Patchesgroup on February 28, 2012 at 4:25 PM

We are currently in the process of sorting out a charity bowling night in june at the mansfield superbowl ,date ,time and price of tickets to be announced shortly ..........

PATCHES IN THE CHAD NEWS PAPER FEB 15TH 2012

Posted by Patchesgroup on February 20, 2012 at 4:10 AM

HI FOLKS TAKE A LOOK AT THIS RECENT ARTICLE OF US XXXX

What’s in the Mansfield Chad this week?

PATCHES Heart Group gives a helping hand

Mums and children who attend a parent support group at the Summer House in Sutton for children with heart conditions.

Mums and children who attend a parent support group at the Summer House in Sutton for children with heart conditions.

Published on Thursday 16 February 2012 08:30

THE stress and worry of having a child born with a serious heart condition is something that no parents want to deal with alone.

But in the Ashfield area, help was not immediately at hand for such families until Sutton mum Maria Linfield decided to take action and set up the Patches Heart Group.

Maria’s daughter Casey Beau, now six, was born with severe congenital heart disease and has already had open heart surgery four times.

Said Maria: “I found that when I had Casey I felt very isolated.

“There were no local groups where I could go and talk to parents going through the same sort of emotions.”

Maria decided that the best way to address this was to start up her own parent support group for families whose children have heart problems.

She approached SureStart and started up Patches at the beginning of this year, with meetings on the second and fourth Monday of the month at the Summit Centre in Kirkby and the second and fourth Friday of the month at the Summer House Sure Start centre in Sutton.

Thirty-four families are already on the members’ list, many of them friends or acquaintances of Maria who she has been contacted by because of their children’s heart conditions.

Nyssa Levy (28), from Sutton, has a son called Harvey (5) who has a rare genetic deletion condition that means he has epilepsy, his development is delayed and he has heart problems, needing a heart operation at five-months-old.

Nyssa said that sharing experiences and information with other parents is a great help.

“It’s really nice to talk to people who are in a similar situation to you.

“You do sometimes feel lonely so it’s good to talk to people with children like yours, even if you don’t have exactly the same experience,” she said.

Laura Wilson’s son Taylor (5) was born with truncus arteriosus, meaning he did not have a proper pulmonary artery and had a big hole in his heart.

He had his first heart operation at just 13 days old and doctors were not sure he would make it through afterwards.

The support from other parents who have seen their children go through similar things is a comfort, said Laura (32), from Kirkby.

“There’s always someone on the end of the phone or on Facebook,” she said.

“There was nothing local other than going back to Glenfield, so it’s nice to know there’s something on your doorstep.”

Though Patches is still in its infancy, the response so far shows the great need there was for such a group.

“It’s still very new and we are looking at other premises on additional dates so we can reach families further afield,” added Maria.

For details search Facebook for Patches Heart Group or contact 07947 933660.


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